Monday, March 28, 2011

Wow! Been A Year Since I Posted!!

I cant beleive it has been a year since I have posted on my blog!! Where does the time go anymore. Well lets see what has been going on in my life in the past year. My daughter has moved out and in with her boyfriend with his son and her two boys. It makes it so nice and quiet at my house most days now. I love them to death but I enjoy my quiet time too. Having PH I need that quiet time. In December my daughter added to our family with another baby boy!! That makes 3 boys for her. They are now 5 yrs old, 20 months old, and 3 months old. They are the light of my world!! Love my grandbabies and enjoy my time with them! My son is now 14 yrs old and I have been home schooling him again this year. He stays active with our church youth group and with family. As long as he has video games and movies he is happy. Getting him to do things outside is like pulling teeth! What is wrong with kids today they never want to do anything that doesnt involve video games. My husband still has his job! Thank God for that!! So many people in our area have lost their jobs in the past couple of years. Things get tough but we are doing our best. There have been a few lay offs where he works, but he has been very lucky as to not be one that has lost their job. My PH is about the same as it was last year. One thing I have been working on is trying to lose weight. I am losing it slowly. Each time I have gone to the doctor in the past year I have been down in my weight and average of 5 pounds per visit. I know this is helping me with my PH. Still have my good and bad days but overall I think I am doing okay. My doc might think different but I know how I feel. Well hope to catch up on reading all of your blogs since I have been gone for so long. I promise not to stay away so long this time!!!

Friday, March 26, 2010

Teenagers!!

I have one son who is 13 yrs old. My daughter is 22 yrs old and have been through all that teenage stuff with her. Now it is my sons turn. Boy does he have that teenager attitude.

I really dont think that a teenager has a brain sometimes. They do some things that you just sit back and think what in the world were they thinking. My son is a good kid but some things I just have to shake my head.

I dont know maybe its just me. I know having PH makes me see things a little bit different. I just know that I will be glad when we make it through all these teenage years. My daughter has finally told me that she should have listened to me all those years. That mom really knows what is best. I just wish I son would learn that now and we will not have to deal with all the things that will be coming up. Right now mostly girls!!!!!lol!

Saturday, March 20, 2010

Echo Results

I got a call from my doc with the results of my echo that was done the end of February. I was sitting in the docs office with my mom. She was getting the results from her biopsy on her thyroid. The doc just told us that they were not sure if it was cancer or not and they would have to do surgery. He was walking out the door to get the paperwork on the surgery.

My cell rang and it was my docs office. They told me that my echo was worse from last year. Last year my pressure was at 56. This year it is at 87. I was surprised it was up that much. I wasnt surprised that it was up some as I have not been feeling well the past six months. I have sleep apena and need another sleep study done. So we are going to be doing that. My nurse said that it could be part of the problem. We have got to work on getting my pressure back down.

I was trying to process the news my mom got and the news I got. We are just going to have to make any changes that are necessary to get my pressures back down. Some days I really hate having PH and this was one of those days.

Sunday, March 7, 2010

Visit to my PH doc

I seen my PH doc on Feb. 26th. I had been having a hard time sleeping and was up the entire night before my visit. She wasn't real happy with my six minute walk. I had not walked as far as the last time. She thinks me not getting any rest could have something to do with it. I also had an echo. She did not have the results before I left. So I don't know if there is any change in that from last May. She did give me the ok to start going back to curves.

On March 19th I have a consult with a surgeon. I have a hernia that has gotten bigger so she wants me to see the surgeon to see if he thinks it needs fixed. It isnt causing me any problems just getting a little bit bigger. This worries me a lot. Having surgery and PH just dont go good together. So we will have to wait and see what he has to say. So I am waiting until after we see him to start back to curves. No since in starting and then not being able to go for a while if I have to have surgery. Any other PHers ever had any surgeries if so how did your PH affect it?

Monday, February 15, 2010

Snow! Snow! Snow!!

Is it ever going to stop snowing here in Ohio? I have not seen this much snow in a long time. PH and snow don't go good together. I have not been out for two weeks now. First it was cause I had to flu then it started snowing. No sooner do we get the roads cleared and we get hit by another storm. The kids are loving it cause they don't have school. They don't realize that they are going to have to make these days up at the end of the school year when it is warm outside!!

This cold weather makes it so hard to breath when I go out. That is another reason why I have stayed inside so long. My husband told me last night that I should get out for a while. I don't want to go out. I don't like having to mess with the snow. People just don't know how to drive on the snow either. I have lived here all my life and still I don't like all this snow. Sure I would love to see snow on Christmas day but that is it.

My grandson loves to play in it. He was having a snowball fight with his papaw the other day. He loved that and his dad took him sledding a few weeks ago. He really loves doing that. He is only 4 yrs old.

So if you could not tell I don't like the snow!!!! Come on Spring!!!!!!!!!!!

Tuesday, August 4, 2009

Been A While Since I Have Posted

It has been a while since I have even thought about blogging. It just has been so very busy around here. I know that is not an excuse but that is my excuse. lol.

My daughter had her baby about two and a half weeks ago. He was early and was in Childrens Hospital for five days. He is doing great now!! He is adorable!! My family is what keeps me going.

I have been feeling pretty good lately. I am having trouble with swelling. Trying to get all this fluid off of me. It is hard for me to take extra water pills if I am not going to be at home. It would help if I would not fall asleep in the recliner with my legs hanging down. I know that is part of the problem.

I know that God is watching over me and my family. Usually summers are very bad for me. So far this summer has been pretty good for me. One reason could be that it hasnt gotten real hot and humid here this year. I am just glad that I have not had a bad summer.

There seems to be so much saddness around lately. So many people have lost their jobs in this area. DHL was here and about 10,000 people are without jobs. Everyone seems so sad so that makes me sad. I dont know if it is the economy or just me that is getting me down. We were worried for a while that my husband was going to lose his job. Thank God he didnt. I dont know what these families are doing that are losing their jobs. Its depressing everywhere not just here.

I found a knot on the front of my neck a few weeks ago. Went to the doctor and she said its a goiter. That I had to go on medicne for my thyroid. I was so worried it was cancer. She did an ultersound on it. One more thing that God has taken care of for me. So I am on another pill. As long as it is helping me I am not going to worry about it. I just have to trust God.

I know I am all over the place with this post. I just have so much running through my mind I am just typing as it comes to me. I guess that is enough for now. How is everyone else doing?

Thursday, June 4, 2009

Test Results Are In

I got my test results from my echo of my heart and the ultrasound on my throat. God is so good. We are happy with the results of both test. Finally I feel that I am heading in the right direction.

First the echo, we do one of these every year. The past three yrs we have not seen any improvements at all. I had been getting a little discouraged over this. Well this one is showing improvement in the heart. That is really good news. I was really happy with that. We started a new medicine called Letairis back in December and I think it is helping. Also I have been trying so hard to lose weight. It is coming off very slow but its coming off. I think that is helping too. I know that losing weight has to help. It will be easier on my heart without the excess weight.

Losing weight is not an easy thing to do. I hear people say just dont eat and you will lose weight. It isnt all about eating it is other things too. I am working on all of that and it is taking time. I know that I will get the weight off but it will be slow. I want it to be slow so that I dont gain it all back.

The other test I had was on my thyroid. I have a knot on the front of my neck. They call it a goiter. They have put me on thyroid medicine and will check it again in a couple of months. I was very happy with this. I was concerned about it and spent time in prayer. I kept giving it to God every time that I started to worry about it. God took care of it for me.

I serve an awesome God. God has always been there for me no matter what I am dealing with. Has it been easy, of course not. God never promised us that everything would be easy for us. I know that during the times that I am going through tough times God is right there with me. That is how I grow as a Christian. I think so many people think that once you become a Christian that you dont have problems anymore. Maybe that you dont but that you shouldnt. That is very far from the truth. I know with my illness I see it as a blessing in some ways. I have come across so many people. I have made some wonderful friends. I am doing this blog and you are here reading it. I count it a blessing to be able to share me story with all of you.

I am here to help others and uplift and vent when I need too.

Always remember that God loves all of us the same and want all of us to be happy!