My husband and I went to his parents for the weekend. They live about four hours away. I had told my husband at the beginning of the week if we were going to go before it got to hot we had to go this weekend.
We left on Friday morning and came home on Saturday night. It was a short trip but we had fun. My husband got to reconnect with his high school buddie. It was nice seeing my husband have a good time. We spent some time at one of his sisters. His brother was there also. My stepson was there with us too. We got to spend some quiet time with my stepson on Friday night. We all enjoyed that. My husband misses his family. It was a surprise to his dad.
On the way up there we had some problems with my central line leaking. We had to stop and I had to change it. I am glad that we got it fixed in time. I was wondering why I was short of breath with I got up on Friday morning. I started getting lightheaded again on Saturday morning. I was afraid that I was going to swell up a lot since I had not taken my lasix for two days. I wasnt to bad when I got home.
We both were so very tired when we got home on Saturday night. I am glad that we made the trip. My husband had a good time and that is what was important to me. This weekend was for him. I love him very much and want to do as much as I can for him. He is always there helping me. This was a small thing that I was able to do for him. I love him very much.
Monday, April 27, 2009
Friday, April 17, 2009
Seen My PH Doc This Week
Wednesday I seen my ph doc. I had stopped taking my Letairis last week. I wanted to see if it was what was making me swell up and feel so tired all the time. It was so I told my doc what I had done. She is putting me back on it at the lower dose. She wasnt surprised that I had stopped taking it. She said nothing surprises her that I do.
I have had a cough for a few days so she did a chest xray and I had my labs and six minute walk done. I have gained some weight back since my last visit in December. I knew I would have a gain. I have got to get the weight off. Why is it so very easy to gain but so hard to lose weight? That is a whole nother issue.
Today my PH nurse called and said that my doc wanted me to do an increase on my Remodulin. Oh what fun that is. I hate the side effects. I had to do an increase a little over a week ago and still having the side effects from that increase. I hate to increase my medicine. To me it is a sign of failure. That my PH is getting worse. I dont like to think about that.
I have a new grandchild on the way and need to get healthy. It seems the harder I try the more sick I get. Some days I feel like that I cannot keep fighting but I have a family that needs me. I just keep praying and trusting God.
I have had a cough for a few days so she did a chest xray and I had my labs and six minute walk done. I have gained some weight back since my last visit in December. I knew I would have a gain. I have got to get the weight off. Why is it so very easy to gain but so hard to lose weight? That is a whole nother issue.
Today my PH nurse called and said that my doc wanted me to do an increase on my Remodulin. Oh what fun that is. I hate the side effects. I had to do an increase a little over a week ago and still having the side effects from that increase. I hate to increase my medicine. To me it is a sign of failure. That my PH is getting worse. I dont like to think about that.
I have a new grandchild on the way and need to get healthy. It seems the harder I try the more sick I get. Some days I feel like that I cannot keep fighting but I have a family that needs me. I just keep praying and trusting God.
Monday, April 6, 2009
Things I Am Thankful For
There has been so much going on that is depressing lately. I thought it was time that I reflect on things that I am thankful for. So here goes.
1. God My Father - Without God I would be nothing. He carries me through each day. I have a peace within me that only God can put there. I know that when I die I will be going to heaven. I thank God everyday for sending his son Jesus to the cross to die for our sins.
2. My husband Russ - I sure don't know what I would do without him. We have been married for about 6.5 yrs now. I was sick before we even met. We met on the Internet. Yes ladies there are really good men that you can meet on the Internet. God put us together is the only way to explain it. He is my rock and will do anything in the world for me and my family. God has truly blessed me with him. I love my husband very much.
3. My daughter Dawn - She is 21 yrs old. Yes she gave me a large amount of gray hairs during her teenage years. She has turned out to be a beautiful woman. A good mother to her son. We are not just mother and daughter we are friends too. I love my daughter very much.
4. My son Spencer - He is my baby boy. I love him very much. He is 12 yrs old and entering those teenage years. Yes we have challenges but he is a great kid who loves to sing in church. I love getting his hugs and kisses everyday.
5. My grandson Landon - What a joy he has brought to our lives. He is 3 yrs old and so full of life. Even on the days I am ready to pull my heart out he is a blessing. He is always ready to help me when he knows I am not feeling well. I love my grandson very much.
6. My mom - There is so much I could say about my mom. She has been there for me from the beginning of getting PH. She is one of my best friends. She is there when I need her for anything. Having her live right behind me has been such a blessing. Mom I love you!
7. My dad - My dad is a very strong man. He is a loving father. He has been there for me from the beginning too. He is there ready to do anything for me when I need his help. Even when he is sick he is more worried about me. He has told me if he could take this illness from me he would. That is true love. I love my dad very much.
8. Special friends Holly, Lisa, Jeanie, Elisha, and Kathy - They all have been so very dear to me. I met Elisha and Kathy as a result of my PH. They both are very special to me. They have been there to help me with whatever I need help with. Holly, Lisa, and Jeanie have always been there for me. Even getting on me when I need to slow down. They can tell when I am having a bad day. I appreciate all they have done for me and how they tell me to stop when I need to.
9. My church family - I know that I have many people praying for me all the time. When I am not feeling well that I can call on them to pray for me. I love my church family.
10. My wonderful doctor Dr. Sood - She is a very good PH doctor. She sometimes has to get tough with me. She doesn't just care about my PH she cares about me as a person and what is going on in my life. I love her and thank God for her.
I could go on and on all day. I needed to get all of this down so that it can be a reminder to me what I have to be thankful for. For those days that I am feeling low and I come back to this post and remind myself. God has truly blessed me.
1. God My Father - Without God I would be nothing. He carries me through each day. I have a peace within me that only God can put there. I know that when I die I will be going to heaven. I thank God everyday for sending his son Jesus to the cross to die for our sins.
2. My husband Russ - I sure don't know what I would do without him. We have been married for about 6.5 yrs now. I was sick before we even met. We met on the Internet. Yes ladies there are really good men that you can meet on the Internet. God put us together is the only way to explain it. He is my rock and will do anything in the world for me and my family. God has truly blessed me with him. I love my husband very much.
3. My daughter Dawn - She is 21 yrs old. Yes she gave me a large amount of gray hairs during her teenage years. She has turned out to be a beautiful woman. A good mother to her son. We are not just mother and daughter we are friends too. I love my daughter very much.
4. My son Spencer - He is my baby boy. I love him very much. He is 12 yrs old and entering those teenage years. Yes we have challenges but he is a great kid who loves to sing in church. I love getting his hugs and kisses everyday.
5. My grandson Landon - What a joy he has brought to our lives. He is 3 yrs old and so full of life. Even on the days I am ready to pull my heart out he is a blessing. He is always ready to help me when he knows I am not feeling well. I love my grandson very much.
6. My mom - There is so much I could say about my mom. She has been there for me from the beginning of getting PH. She is one of my best friends. She is there when I need her for anything. Having her live right behind me has been such a blessing. Mom I love you!
7. My dad - My dad is a very strong man. He is a loving father. He has been there for me from the beginning too. He is there ready to do anything for me when I need his help. Even when he is sick he is more worried about me. He has told me if he could take this illness from me he would. That is true love. I love my dad very much.
8. Special friends Holly, Lisa, Jeanie, Elisha, and Kathy - They all have been so very dear to me. I met Elisha and Kathy as a result of my PH. They both are very special to me. They have been there to help me with whatever I need help with. Holly, Lisa, and Jeanie have always been there for me. Even getting on me when I need to slow down. They can tell when I am having a bad day. I appreciate all they have done for me and how they tell me to stop when I need to.
9. My church family - I know that I have many people praying for me all the time. When I am not feeling well that I can call on them to pray for me. I love my church family.
10. My wonderful doctor Dr. Sood - She is a very good PH doctor. She sometimes has to get tough with me. She doesn't just care about my PH she cares about me as a person and what is going on in my life. I love her and thank God for her.
I could go on and on all day. I needed to get all of this down so that it can be a reminder to me what I have to be thankful for. For those days that I am feeling low and I come back to this post and remind myself. God has truly blessed me.
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